Post-Polio Syndrome
Post-polio syndrome (PPS) is a condition that affects polio survivors years after their initial recovery. It is characterized by new or worsening symptoms such as muscle weakness, fatigue, and joint pain. PPS can develop decades after the original polio infection, often impacting muscles that were previously affected. The exact cause is not fully understood, but it is believed to result from the gradual deterioration of nerve cells that were damaged during the initial illness. While there is no cure, treatment focuses on managing symptoms and improving quality of life through physical therapy, lifestyle adjustments, and assistive devices.
Maine Resources
Post Polio Support Group of Maine - A non-profit organization offering the latest information on the late effects of polio to survivors, their families, and healthcare providers throughout Northern New England and parts of Canada.
Regional Resources
Shoreline Polio Survivors Group - Based in Connecticut, this group offers support and information for polio survivors now experiencing symptoms associated with post-poliomyelitis. They provide resources and a community for individuals dealing with PPS.
National Resources
Post-Polio Health International (PHI) - A non-profit organization dedicated to enhancing the lives and independence of polio survivors, PHI offers information, advocacy, and support for individuals affected by PPS.
Polio Network - Managed by polio survivors and friends, this network provides support and information to polio survivors, their families, caregivers, and healthcare professionals.