Resources for Parents
Maine Resources
Maine Parent Federation - The Maine Parent Federation’s mission is to: “bring the power of knowledge and voice to families of children/dependents with special needs assisting in opening the gateway to systems of care.” MPF offers five different programs, all with slightly different focuses. Some examples of the various programs and services include: workshops, support groups, and one-on-one assistance; as well as: providing information, training, and advocacy to help families understand their rights, access services, and become effective advocates for their children.
G.E.A.R Parent Network - Based out of Augusta, ME, G.E.A.R. is an online resource hub (lead by parents, for parents) which is tailored for parents & caregivers of children ages 0-21 with disabilities in Maine. Offering a comprehensive array of support services, educational tools, and advocacy resources, the platform equips families with the knowledge and tools necessary to navigate the complexities of caring for a child with behavioral health needs. GEAR Parent Network fosters a supportive environment where parents can access guidance on accessing services, understanding their rights, and advocating effectively for their children.
NAMI Maine | Respite Care - NAMI Maine's Family Respite program extends a helping hand to families & caregivers who are navigating the challenges of supporting children who have higher needs. By utilizing the Respite program, caregivers can take some much needed (and well deserved) time for themselves and have peace of mind knowing that their family member is in good hands while they are on a temporary break.
Spurwink Services | Youth & Families - Spurwink offers a variety of tools, support services, therapy options and more for children who have autism, intellectual disabilities, or who are struggling with behavioral issues. There are additional resources on this page if you are interested in fostering or adopting a child.
Non-Profits Which Provide Financial Funds/Grants:
Kiddos' Clubhouse Foundation - This organization “provides scholarships to families who are not able to pay for therapeutic services for their children with special needs.”
Oracle Health Foundation | Apply for a Grant - The Oracle Health Foundation provides pediatric grants for clinical needs, equipment, travel, lodging, and vehicle modifications for children under 18 (or up to 21 in specific cases). Grants cover necessary healthcare expenses not covered by insurance, with specific eligibility criteria based on income and medical need. Applications are reviewed monthly, and funds are paid directly to service providers. Detailed guidelines and an application process are outlined on their website.
Robbie Foundation - The Robbie Foundation is dedicated to improving the lives of children with disabilities in Maine by providing funding for adaptive equipment, assistive technology, and therapy that are not covered by insurance. The foundation, named after a boy with cerebral palsy, aims to help as many Maine children as possible.
The Orange Effect Foundation | Grant Application - The Orange Effect Foundation provides grants to children (and young adults up to 21 years old) with speech disorders. Grants cover speech therapy and communication devices, serving as a funder of last resort after insurance. Applications are reviewed quarterly with deadlines on February 1, May 1, August 1, and November 1.
National Resources
Family Voices - This is a national organization that supports families of children and youth with special health care needs and disabilities. It provides resources such as family engagement materials, leadership training, local support networks, and advocacy tools to help parents navigate healthcare systems and policies. The organization also focuses on promoting diversity, equity, and inclusion within health care. Parents can access tailored resources, find local assistance, and connect with a community of families facing similar challenges.
Kiddos' Clubhouse Foundation - This organization “provides scholarships to families who are not able to pay for therapeutic services for their children with special needs.”
Oracle Health Foundation | Apply for a Grant - The Oracle Health Foundation provides pediatric grants for clinical needs, equipment, travel, lodging, and vehicle modifications for children under 18 (or up to 21 in specific cases). Grants cover necessary healthcare expenses not covered by insurance, with specific eligibility criteria based on income and medical need. Applications are reviewed monthly, and funds are paid directly to service providers. Detailed guidelines and an application process are outlined on their website.
p2pUSA.org - Parent to Parent USA (P2P USA) offers nationwide support for parents of children with disabilities through a network of trained volunteer parents who provide one-on-one emotional support and guidance. The organization helps parents find local resources, connect with others in similar situations, and access relevant information. P2P USA emphasizes the importance of community and aims to ensure no parent feels alone.
The Orange Effect Foundation | Grant Application - The Orange Effect Foundation provides grants to children (and young adults up to 21 years old) with speech disorders. Grants cover speech therapy and communication devices, serving as a funder of last resort after insurance. Applications are reviewed quarterly with deadlines on February 1, May 1, August 1, and November 1.