ALS
Maine Resources
MaineHealth - ALS Specialty Care Brunswick - Recognized Treatment Center offering comprehensive evaluation and treatment by specialists in neurology, nursing, physical therapy, occupational therapy, speech therapy, respiratory therapy, nutrition, and social work, with ongoing support from the ALS Association.
Regional Resources
The ALS Association - Northern New England - Serves the needs of those living with ALS and their caregivers in Maine, New Hampshire, and Vermont, providing support and resources.
Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS) -
A collaborative network of ALS specialists focused on research and clinical trials to find effective treatments for ALS.
Compassionate Care ALS - Provides equipment, educational workshops, and guidance to individuals living with ALS, as well as support for caregivers.
ALS Therapy Development Institute - A nonprofit biotechnology organization dedicated to developing effective treatments for ALS through innovative research. They host events around New England.
National Resources
Muscular Dystrophy Association (MDA) - The MDA is an American nonprofit organization dedicated to supporting people living with muscular dystrophy, ALS, and related neuromuscular diseases. They provide patient services, fund research, and advocate for individuals affected by these conditions.
I AM ALS - Offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS. They aim to empower patients and caregivers through community-driven initiatives.
Les Turner ALS Foundation - Founded in 1977, the Les Turner ALS Foundation is one of the longest-serving ALS groups in the country. Their support services team helps people living with ALS, and they offer free ALS support groups online.